visiting "The eyes speak "Honeysuckle's blog, I found this lovely girl called Gina and suffers Reet syndrome, his mother Elisabet Pedrosa fights on to day of this disease and, in his book "Creatures from Another Planet." With the sale of the book to raise funds for research into this disease.
Everyone can help, Gina put the seal on your space and transfer it to the blog friends.
If you want to know more visit Criaturasdeotroplaneta's blog.
Everyone can help, Gina put the seal on your space and transfer it to the blog friends.
If you want to know more visit Criaturasdeotroplaneta's blog.
What Reet syndrome?
Rett syndrome is a rare hereditary disease causing problems in the development and the nervous system, especially among girls. Is related to autism. At first, infants with Rett syndrome seem to grow and develop normally. However, between 3 months and 3 years they stop developing and even lose some skills. Symptoms include loss
speech
Loss of hand movements such as grasping
Compulsive movements such as hand wringing
Balance problems
Respiratory problems
behavior problems
learning problems or mental retardation
Rett syndrome has no cure. Some symptoms can be treated with medicine, surgery and physical therapy or speech therapy. Most people with Rett syndrome live into middle age or older. Often need lifelong care.
FROM ANOTHER PLANET
As a chronicle of the fight against Rett syndrome is like a new book 'Creatures d'un altre planet "(Creatures from another planet), written by journalist and Elisabet Pedrosa mother of one of the 350 girls living in Catalonia. Shape diary, the story explains the everyday moments in a clear and honest, the struggle of a mother, one of many families, the disease, with doubts, joys and sorrows that appear with the day to day.
With the publication of this book is the first reference to the literature on the syndrome, in addition to maximum publicity, the goal is to raise funds for medical research (each player and half a euro earmarked for this purpose in addition to 100% of copyright), the best hope for those affected. Since the Foundation of the Hospital de Sant Joan de Deu de Barcelona and the Catalan Association of the syndrome Rett, in coordination with other research centers, the team Mercè Pineda, specialist neurologist syndrome, is seeking funding for a research project three years provided new clues about the disease.
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